Frustration . . .

I was at the hospital for 4 hours yesterday. X-ray was backed up which made us late to see Dr. Fortuna. Then we had to wait a long time there too. It was worth the wait because we received a great report. Chest x-ray looked wonderful and so did his blood work. Oxygen saturations were 96 - WOW!!!! We are staying on all the same meds and going back in 2 weeks.

So here is the crazy news. Matthew has been running a low grade fever for several days and Dr. Fortuna was thinking it may be his body trying to recover but we should have the pediatrician look him over on Wednesday ( an already scheduled appt) for an ear infection or something else. If any new symptoms appear to call right away. Well. . . . . . . . . we woke up this morning with a new rash that looks like he has a sunburn. We saw the pediatrician (a 2 hour wait - UGH) and she thought he may have scarlet fever from strep throat. His throat culture came back negative so it's not that. She called the surgeon and he was in surgery so they were going to have him call her back. She sent us with a script to draw blood cultures but wanted us to wait and see what else Dr. Fortuna wants us to do. Dr. Fortuna is to call us when he gets out of surgery. We are still waiting. . . . . . . . . . the rash is spreading all over his head and face and has moved to his belly. He is itching like crazy but it is very different looking than the yeast infection rash. One concern is endocarditis, a infection around the heart. We hope not but at this point nothing shocks us. We are waiting for the call to head to the hospital. Please pray they figure this out soon. We will update after the blood cultures and talking to Dr. Fortuna.