Slow and Steady and Tired...

Mathew is still doing really well. He had a pretty restless night and is still very sore. Amy also slept very little last night. Around 3 AM this morning she awoke to find a pool of blood in Matthew's bed. She immediately ran out of the room to find his nurse and after a flurry of activity they discovered that Matthew managed to disconnect one of the IVs in his foot resulting in a slow and steady leak. It took about an hour and a half to get Matthew cleaned up and reconnected. In the end, it looked a lot worse than it was and he didn't really lose much blood.

One of the things that has surprised us is that he seems to be hurting more than we had prepared ourselves for. Of course, with his first 2 surgeries he couldn't tell us what he was feeling. We knew he was hurting but we didn't know how bad. Now we know, it was a lot. We hear some version of owie more than anything except where's mommy. His favorites are "I want to go home now, I want my Mommy, I don't like my owies and I don't like my hospital."

His Doctors are continuing to adjust his medication to find the magic formula to help him feel better. He is now off of all narcotics. The are weaning his other pain medications and will soon have him on a regular tylenol / ibuprofen rotation. That have increased the amount of diuretics he's getting in order to keep the fluid out of his chest. He is now filling the 2 drainage tubes in his chest and his diapers more quickly. In fact, his diaper just filled up so fast he leaked out and peed all over Amy, who is now sporting a pretty pair of greenish scrub pants.

The goals for today are to increase his fluid output, reduce meds, get him eating and somehow convince him that it's a good idea to go for a short walk. I'm not sure how that will work with him still attached to what seems like 50 cords and wires and an IV stand that's lit up like a Christmas tree. He still has one IV in his right foot and a line in his femoral artery. Time for that walk....we'll let you know how it goes.