Complaining . . .

Matthew had a set back tonight. He has become very dehydrated which has caused him to throw up and dry heave for the last 3 hours. He is so miserable!!! This has happened due to them trying to keep fluid off his lungs. Managing this requires such a delicate balance. They are now bringing back medication and machines that he was weaned from earlier today. We are praying that the extra fluid they are giving him and reducing his diuretics will help him start feeling better soon. We are so exhausted and I think I'm just starting to feel down. His heart is staying so strong and we know first hand that setbacks are part of it all, but it still flat out stinks to see your little boy so miserable. Please pray this is resolved by morning and that he doesn't end up with fluid around his lungs or belly. The staff is trying so hard to manage this delicate balance. They said they think they may have pushed him too much 48 hours after surgery.

On a brighter note, he did go for his walk and did well. He then went for a wagon ride and enjoyed it. All of this was before he got sick. I will post pictures of it later. His nurse Kris has gone above and beyond the last 3 days. She even stayed late tonight to help out with him.

Thanks for letting me share. God is good and we know he will get Matthew over this hump but Craig and I can't pull ourselves away from Matthew's bedside until He does!