I wanted to add some detail to Craig's email since I know so many of you like to pray specifically. Our prayer for Tuesday is that Matthew's pulmonary artery has grown properly and has not narrowed. This is apparently one of our cardiologist's concerns and is important for Stage 2 surgery. Our other prayer is that the coarctaction of his aorta has not returned and that blood is flowing well through his aorta. Our last request is that his heart is having good cardiac output with the low saturations and that the pressure in his lungs is down (required for Stage 2) so that we can hold off a few more weeks for the stage 2 surgery. We are very nervous about the possibility of repeating the first stage surgery with a larger shunt. God has given us a fighter and with our prayers we believe that Matthew will fight through this too.
On a second note, my sister's baby, Alyssa has finally made it home after an 11 day hospital stay. She is still receiving breathing treatments and is on multiple medications, but she is doing so much better. She has appointments on Friday and Tuesday to be rechecked and our prayer is that her lungs are healing and there will be no more episodes causing her lung to collapse. Thanks for all of your prayers for them we know they helped.
I can't thank you enough for all of the prayers, support and love we have received. All of you have played a special part in Matthew's life and we will never forget it. I also want to thank my husband for being such a strong person for me to lean on. He is such a huge help around the house and jumps right in helping with the kids after he has put in a long day at work. I couldn't survive all of this with out his help and the emotional support he provides me.
By the way, Matthew's saturations have been more stable yesterday and today. Thank GOD!!! We are having Matthew dedicated at church this Sunday. We are so excited to have this done. Matthew has truly been our miracle from God. This will be our first outing other than doctor's appointments and we are looking forward to it. We will add some pictures of his dedication on Sunday.
July in Review
12 years ago
3 comments:
Hello, my name is Heather Colston and I work with Amy's mom at the bank. We have Brodie who is two now and has HLHS. His first shunt actually narrowed and almost closed on us. We had sats in the teens just before surgery. However, the doctors put in a second shunt and he did beautifully for several months after that until his little body was ready for the second stage. I know it is so scary but you also do not want to do the second stage before Matthew is ready because that could prove to be more risky than the second shunt. I know exactly what you are going through it is so scary and overwhelming. So far we have done each stage twice. Brodie had to have two shunts and we have a bidirectional glenn. These little guys are so strong, they don't know how to do anything but fight. I will continue to pray for your family and your doctors.
Just by looking at the latest picture of Matthew he has his fists clinched and is ready for the fight. He is such a cutie. Hang in there guys and all will go as planned. Best wishes,
Carol
Matthew looks like he is filling out pretty good. I wish I could give him kisses. I am praying for you guys as you go through this next surgery. After going through everything that we have been through with Alyssa the past couple of weeks, I know how scary all of this can be. Seeing your child in pain and turning them over to the doctor can be so scary. When you think of what Job in the Bible went through, you realize that God will give you the strength you need and never allow you to go through something that you cannot handle. I'm sure God will continue to give you the strength you need. I am so proud of both of you. You have both been so positive through all of this and have encouraged me when I needed it this past two weeks. Thanks for keeping us in your prayers. I love you guys! Love, Kim
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