We received bad news today. Our baby has been diagnosed with a hypoplastic right ventricle. This is a serious congenital heart defect where the right ventricle fails to grow and develop appropriately. Amy and the baby should be ok to carry full term, but problems will begin immediately after birth, when his body must distribute oxygenated blood on its own. Unfortunately, our baby boy's right ventricle barely exists. There is no way to repair the ventricle itself. We will have to rely on a series of procedures typically performed over 3 separate surgeries that will ultimately bypass the right ventricle altogether. The first surgery will be performed almost immediately after birth.
As you can imagine we're very nervous and scared right now and we're both taking the news pretty hard. Amy may not be able to go back to work after he's born because of the constant care required. This is something we had not planned for and is pretty concerning in itself. Please pray for a miracle for our little boy and continue to keep our family in your prayers. We know that's the only way we'll be able to get through this tough time.
At this point we're waiting to schedule an appointment with a cardiac team that will begin laying out our course of action. We'll keep you posted as we learn more.
Love, Craig, Amy & Taylor
July in Review
12 years ago
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